Privacy Policy

Updated: January 10, 2024


The Cancer Cachexia Society Inc. (CCS) values and respects your individual privacy and is committed to protecting it. This Privacy Policy explains how CCS may collect, uses and safeguards information collected through its website

Personal Data We Collect

While the personal data we collect varies depending upon our interactions with you, we may collect personal data from you, from third-party sources, and automatically:

Personal Data Collected Directly from You.

We may collect the following personal data from you:

  • Account Services. When you register or create an account, we may collect your name, email address, address, phone number, business contact information, organization name, job title and primary role, account name and password.
  • User Content. We collect user-generated content when you submit information or feedback to our Site or Services.
  • Communications. We collect the information you provide such as contact information and records of our communications.
  • Transaction and Billing Information. When you make a purchase through our site, we collect purchase information, including payment card information through a third-party processor.
  • Surveys. When you fill out a survey, we collect your response, which depends on the type of survey, but may include satisfaction with a product or Service.
  • Events. We also collect personal data related to your registration for and participation in our events.
  • Other Information. We may collect other personal data that you consent to or would reasonably expect based on the nature of the circumstances.

Personal Data Collected from Third Parties.

  • We may collect personal data about you from third party sources such as public databases, advisors and agents, affiliates and subsidiaries, Internet service providers, operating systems and platforms, regulators, government entities and law enforcement, data brokers and analytics providers, advertising and marketing companies, business partners, business customers, clients, trade show sponsors, social media platforms, or other third parties.
  • We may receive lead and prospect information from third parties about prospective members or partners that may be interested in our Society. We may also engage with third parties to enhance or update our membership and partner’s information.
  • If you post information about us or engage with us on third party platforms or choose to link your Company account to or log in to our Services with a third-party account (e.g., Facebook or LinkedIn), we may collect personal data about you from that third party platform or account.
  • These third-party platforms and services control the information they collect and share about you. For information about how they may use and disclose your information, including any information you make public, please consult their respective privacy policies.

Personal Data Collected Automatically.

When you visit our Sites or Services, we and third parties may collect information, including personal data, including using cookies, pixel tags, and other similar technologies such as:

  • Device and Browsing Information. When you visit our Site, we may collect information, which may be considered personal data under certain laws, such as IP address, browser type, domain names, access times, date/time stamps, operating system, language, device type, unique or online identifiers, Internet service provider, referring and exiting URLs, clickstream data, and similar device and browsing information.
  • Activities and Usage. We may also collect activity information related to your use of the Site, such as information about links clicked, searches conducted, features used, items viewed, time spent on certain pages, your interactions with us, log file information, and other activity and usage information.
  • Location Information. We may also collect or derive general location information about you, such as through your IP address.

How We Use Personal Data

Generally, we may use personal data for the following purposes:

  • Providing Services and Support. To provide and operate our Services, communicate with you about your use of the Services, provide troubleshooting and technical support, respond to your inquiries, fulfill your orders and requests, process your payments, communicate with you, and for similar service and support purposes.
  • Communications. To respond to your questions and fulfill your orders and requests; to allow you to participate in interactive features; to seek your views or comments and to send you communications, which you have requested or that may interest you; and to notify you of changes to our Services.
  • Marketing and Advertising. To send you information about our Society, such as conferences and educational events, opportunities, membership, newsletters and any other information that you sign up to receive and to manage, analyze, measure and improve our advertising campaigns.
  • Planning and Managing Events. For event planning and management, including registration, attendance, connecting you with other event attendees, and contacting you about relevant events and Services.
  • Research and Surveys. To administer surveys and questionnaires, such as for market research or customer satisfaction purposes.
  • Security and Protection of Rights. To protect the Site and Services and our business operations; to prevent and detect fraud, unauthorized activities and access, and other misuse; where we believe necessary to investigate, prevent or take action regarding illegal activities, suspected fraud, situations involving potential threats to the safety or legal rights of any person or third party, or violations of our terms or this Policy.
  • Legal Proceedings and Obligations. To comply with the law and our legal obligations, to respond to legal process and related to legal proceedings.
  • General Business and Operational Support. Related to the administration of our general business, accounting, auditing, compliance, recordkeeping, and legal functions.

How Long We Retain Personal Data

Your personal data will be retained until such time as needed to fulfill the purposes and uses for which it was collected as outlined in this Policy. If you request that we delete your personal data from our databases, please note we may still retain your personal data as necessary to comply with our legal obligations, regulatory requests, resolve disputes, and enforce our agreements.

External Links

Our Sites and Services may contain links to third-party websites or features. Any access to and use of such linked websites or features is not governed by this Policy, but instead is governed by the privacy policies of those third parties. We are not responsible for the information practices of such third parties, including their collection of your personal data. You should review the privacy policies and terms for any third parties before proceeding to those websites or using those features.

Changes to this Notice

If we decide to change or update our Policy, we will post those changes on this page. Your continued use of the Site and our Services is subject to our most up-to-date Policy, posted here. If we make any material changes, we will notify you by an update on our Site.

Your Feedback

We welcome feedback on our privacy policy. Please send us any comments to [email protected].